The Beamer Hughes Foundation is named in honor of Thomas Hughes, II, or Beamer, as he was affectionately known throughout his life. Beamer passed away from muscular dystrophy in 2008 but his caring, self-less and giving legacy continues to live on by providing vital equipment and services to children and adults with muscular dystrophy.
When you think of muscular dystrophy, you may think of children in wheelchairs who have this disease. I want you to know that muscular dystrophy affects children and adults and can strike at any age without warning or reason. Currently, there are 23 different types of muscular dystrophy, including some you may have heard of such as Duchenne and A.L.S. (Lou Gehrig's Disease).
The mission of the Beamer Hughes Foundation is to provide children and adults with muscular dystrophy the vital equipment and services they need to live active and fulfilling lives. While fighting the devastating effects of muscular dystrophy, Beamer, along with his family and friends began raising awareness of muscular dystrophy in 2000 throughout the Rochester/Finger Lakes Region with an annual golf tournament. Proceeds from the annual event continue to assist with research for treatments and cures, and provides children and adults with vital equipment needs including leg braces; wheelchairs; power chairs; stair, bed and pool lifts; physical therapy, water therapy, doorway and bathroom modifications, and specialized communication devices throughout the year.
All of the money raised from these events and all donations provides children and adults in Genesee, Livingston, Monroe, Ontario, Orleans, Seneca, Wayne, Wyoming and Yates counties with the equipment mentioned above and services including:
Patient services at the Neuromuscular Disease Clinic located at the University of Rochester, New York Medical Center.
Support groups to assist children, adults, and families affected with muscular dystrophy.
Summer Camp Program for children (ages 6 to 21) with muscular dystrophy. Locally, the week-long camp is held annually at the Rotary Sunshine Campus in Rush, New York.
In addition, the Beamer Hughes Foundation has funded and provided the Neuromuscular Disease Clinic at Strong Memorial Hospital with:
A high-capacity platform scale, which enables people with muscular dystrophy to be weighed while seated in their wheelchair or power chair. It also allows those who are able to walk to be weighed as well. The scale is used by hundreds of patients each week. Getting accurate weights is critical for patients at risk for swallowing dysfunction and malnutrition. Additionally, the medical staff prescribes weight-based medications and accurate patient weights allow for better management of those medications.
Elevated chairs for patients to use in the Neuromuscular Disease Center eases the ability of people with muscular dystrophy to sit in a chair as their hip and leg muscles are severely weak from the effects of the disease. Traditional height chairs are almost impossible for patients with muscular dystrophy to get out of, and not everyone who has muscular dystrophy is in a wheelchair or power chair.
To learn how the Beamer Hughes Foundation has and continues to change lives for children and adults in our community with muscular dystrophy, please check out our web site at www.thebeamerhughesfoundation.com (and click on Thank You section) and/or visit our Facebook page.
Beam...the gift that keeps on giving!
We focus on: Human Services, Health
Where we are: Genesee, Livingston, Monroe, Ontario, Orleans, Seneca, Wayne, Wyoming, Yates
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